LAM Fact Sheet

How is LAM Diagnosed?

Many symptoms of LAM are similar to those of more common lung diseases such as asthma and for this reason patients may have symptoms for a long period before LAM is diagnosed correctly. Symptoms, X-rays and breathing (lung function) tests may suggest LAM but the diagnosis is usually confirmed by a CT scan (a detailed X-ray scan) of the lungs and sometimes with a lung biopsy. In a patient with LAM the CT scan usually shows typical cysts throughout the lungs. A lung biopsy may be performed in some cases where the doctor feels more information is needed to ensure that the diagnosis is correct. This is usually carried out through a fairly small incision in the chest under a general anesthetic. In LAM the biopsy will show the typical cysts and smooth muscle cells. The kidney tumours are also seen best on a CT scan although they can also be seen with ultrasound.

 

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