LAM Fact Sheet
The future - a three pronged attack?
- The best solution to LAM is to find out how to counteract the effects of
the abnormal proteins in LAM cells so that it can be prevented or cured.
This is the purpose of basic laboratory research.
- Clinical studies are needed to find out more about LAM and to test
potential new treatments as they become available. To do this properly
requires well designed clinical trials comparing one treatment with another
or with a dummy. Because LAM is rare this is difficult but with
international collaboration it should be possible to find enough patients
who would be willing to take part in a treatment trial for maybe one or two
years.
- To provide help and support for patients with LAM. Patients with a rare
disease suffer from isolation and LAM Action has enabled patients to meet
other patients with LAM, communicate by phone or email, and learn more about
LAM through the website and LAMPost. The annual meeting in Nottingham has
grown steadily and all patients and their families and friends are welcome.
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