Introduction | LAM Action

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Juliet Stevenson

ERS Guidelines

ERS Guidelines on the Diagnosis and Management of LAM are now available

Comprehensive and practical guidelines
Prepared under the auspices of the European Respiratory Society
Cover all aspects of the disease from presentation, through diagnosis, to management of the disease.

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Introduction

Lymphangioleiomyomatosis or LAM is a rare lung disease that only occurs in women. It affects just over one person in a million and we are aware of 75 women in the United Kingdom who have LAM. It appears to occur world-wide and is equally rare in other countries.

The average age of onset of LAM in patients in the United Kingdom is 34 years. It nearly always starts before the menopause and when, very rarely, it has been diagnosed after the menopause, it has usually been in women who were taking hormone replacement therapy (HRT).