- Introduction
- What is LAM?
- What happens when you have LAM?
- What is the cause of LAM?
- Effect of Hormone Changes on LAM
- Air Travel
- How is LAM Diagnosed
- How does LAM Progress?
- Is there any treatment for LAM?
- Treatment to try and stop LAM progressing
- Treatment for Kidney Tumours
- LAM and Tuberous Sclerosis
- LAM Action
- LAM Register
- What is happening in other countries?
- What research is taking place?
- The future - a three pronged attack?
- Fact Sheet - Feedback
- Download Version
Our Patron
Juliet Stevenson
ERS Guidelines
ERS Guidelines on the Diagnosis and Management of LAM are now available
Patient Alert
Please sign up to donate tissue
LAM Action
Patients with LAM are unlikely to know anyone who has heard of LAM or who has the condition and this may lead to feelings of isolation. The UK LAM Trust was set up in 1997 following a meeting of 21 patients with LAM in Nottingham. In 2003 the name was changed to LAM Action when the association became an independent charity (registered charity number 1096637). LAM Action is a self-help group and keeps a list of patients who are happy and willing to talk to other patients. There is also a lively, informative and entertaining newsletter for members of LAM Action called the LAMPost.
The other function of the trust is to raise money for research.
For information please contact Jan Johnson
See also Patient Support & Join LAM Action for further details about LAM Action
